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-
- <h1>
- <span><a id="jumper" href="#jumpto" title="Un peu perdu ?">?</a></span>
- Neurodiversity (archive)
- <time>Pour la pérennité des contenus liés. Non-indexé, retrait sur simple email.</time>
- </h1>
- <section>
- <article>
- <h3><a href="http://tdotc.eu/2018/06/09/neurodiversity/">Source originale du contenu</a></h3>
- <blockquote class="pull-quote">
- “One way to understand neurodiversity is to think in terms of human
- operating systems. Just because a <span class="caps">PC</span> is not running Windows,
- doesn’t mean that it’s broken. By autistic standards, the ‘normal’
- human brain is easily distractable, obsessively social, and suffers
- from a deficit of attention to detail.” — Steve Silberman, author
- of <a class="reference external" href="http://stevesilberman.com/book/neurotribes/">Neurotribes</a>.</blockquote>
-
- <p class="center">❦❦❦</p>
-
- <p>… and suffers from a deficit of attention to detail, just like
- Windows, I would add.</p>
-
- <p>I came across this quote while watching a semi-related video about
- autism (linked at the bottom) by Sarah and Liam Harvey. There is much
- I could write about autism—and I will probably do, in time—but today
- I’ll focus on neurodiversity.</p>
-
- <p>The quote from Steve Silberman hit me surprisingly hard today.</p>
-
- <p>Truth is, long before I realized I was autistic, I had abandoned
- Windows and discovered the joy of alternative operating systems. I had
- customized my own computer, but what I was truly cherishing, as early
- at fourteen years old was the sheer diversity of operating systems in
- existence. I knew that was called “diversity” but I did not know, back
- then, what the word “diversity” means for others today.</p>
-
- <p>What I did know, however, is that mentioning other operating systems
- than Windows was attracting bad sorts of attention: mockery,
- disapproval, fear, a general form of opprobrium which I quickly
- learned to avoid at all costs. Without access to a group of peers
- (that came six years later), I simply hid my technical
- endeavors. Played “make pretend” by staying knowledgeable on Windows
- developments, attempting to reskin the appearance of my software
- towards “normality” (with more or less, and often less, success).</p>
-
- <p>For context, remember: these were the 90s, the time where Intel and
- Microsoft were king. Computers were still super expensive. And I was
- being raised in a conservative, often reactionary
- environment. Unorthodoxy in computing was <em>seriously</em> unpopular.</p>
-
- <p>The discovery that one could <em>choose</em> an operating system had been
- already a foundational learning moment, which reshaped my intellectual
- endeavours and set me on a path I am still walking more than twenty
- years since. But what most fascinated me was the study of differences
- between the available options. Why these differences existed, since
- when, who was responsible for them, what kind of person was using one
- operating system more than another. And the next most astonishing,
- disappointing and emotionally devastating discovery for me was that
- <em>no one else cared</em>—to the contrary.</p>
-
- <p>What I was doing was not “normal”; it was <em>bad</em>, and the fact that I
- found beauty in this diversity made me even <em>worse</em>. So I hid. I felt
- lonely, guilty, and it brought me bad habits that haunt me to this
- day: I still avoid sharing what I learn or my intellectual hobbies
- with my peers, my family and my friends. Out of learned fear they
- might disapprove.</p>
-
- <p>And today, I hear Steve Silberman drawing this analogy between
- neurotypism and “normal” operating systems, and <em>I understand</em>—for
- the first time, ever, I understand the fears, the loneliness, the
- suffering of neuroatypicals, especially teenagers, and their parents.</p>
-
- <p class="center">❦❦❦</p>
-
- <p>The irony of the situation is not lost on me.</p>
-
- <p>I now wear my autism on my sleeve, and I openly and regularly
- highlight to peers and new acquaintances how it impedes my
- activities. So I often “feel” the assumptions by friends and
- acquaintances that autism has brought me pain and misery in my
- childhood; I sometimes “feel” when they censor themselves from asking
- me questions about it, to avoid re-opening imagined old wounds.</p>
-
- <p>The truth is, I did not <em>suffer</em> of autism. It was there, and probably
- made certain things more difficult than otherwise (especially
- respective to social interactions and friendmaking), but it never was
- something I would resent about myself. There has never been self-hate
- about this. I had sufficiently many other concerns going, and,
- foremost, I lacked so much self-awareness (…yay autism…), that it
- never came up to me that autism was a thing I should be concerned
- about, or that others may be concerned with. Not the least because I
- simply didn’t <em>know</em> I was autistic.</p>
-
- <p>Sure, I got bullied plenty, but the bullying was focused on other
- topics. The fact that my language use was not appropriate for my age
- group, for example. Or that I performed above expectations at school
- assignments. Or that I was doing irregular things with computers. My
- life today is more complicated because of what I experienced in
- <em>those</em> dimensions early on, but not much so because of autism.</p>
-
- <p>The fight to make neurodiversity visible and accepted is not my
- fight. Insofar there is a “movement”, I am not part of it. I did not
- suffer, so I do not deserve it.</p>
-
- <p class="center">❦❦❦</p>
-
- <p>The illustration used by Sarah Harvey in her video looks like this:</p>
-
- <p><a class="reference external" href="/2018/06/09/neurodiversity/images/neurodiversity.jpg"><img alt="neurodiversity" src="/2018/06/09/neurodiversity/images/neurodiversity.jpg?w=400" /></a></p>
-
- <p>I see this rainbow lettering as a cute form of <a class="reference external" href="https://en.wikipedia.org/wiki/Cultural_appropriation">cultural
- appropriation</a>. I initially figured it makes the “fight” more real,
- but on second thought I think it is meant to attract allies: those who
- already support sexual and gender diversity could perhaps be made to
- extend their support to neurodiversity by appealing to the same symbols.</p>
-
- <p>The parallels are striking, even.</p>
-
- <p>There is a similar fear and loneliness of children, teenagers and parents.</p>
-
- <p>There is a similar anxiety of adults who discover a new way to lead
- their existence after another existence of self-denial or self-ignorance.</p>
-
- <p>There is a similar fight for recognition, for acceptance.</p>
-
- <p>There is a similar ignorance of the masses, education to be given.</p>
-
- <p>There is similar active disinformation by opposing forces, politics to
- be played.</p>
-
- <p>There are, similarly, social rules to be learned, to be adapted. There
- are friends and family members to be accommodated.</p>
-
- <p>There are, similarly, traditions that cannot be continued as-is and
- must be transformed.</p>
-
- <p>The colors are fitting.</p>
-
- <p>At <a class="reference external" href="https://en.wikipedia.org/wiki/Stonewall_riots">Stonewall</a>, the transsexuals fought for the rights and acceptance of
- homosexuals, bisexuals and other deviants. The Ts <em>had</em> to fight
- as their need for medical attention and public accommodation forced
- them in the open. In our time, narcoleptics, Tourette’s, deep autists,
- and bipolars fight for the rights and acceptance of HFAs, ADHDs and
- dyslexics. They fight for us because <em>they</em> cannot hide, so they might
- as well fight.</p>
-
- <p>And I feel indebted to them, as much as I was grateful for what the
- Ts did for me before then.</p>
-
- <p class="center">❦❦❦</p>
-
- <p>A startup that I currently work with is very much concerned with
- “diversity.” Report after report, presentation after presentation, I
- get to hear how “we should strive for more diversity” and how “little
- diverse” our group currently is.</p>
-
- <p>This bothers me to no end. Ostensibly, the only thing that seems to
- matter is the Equal Opportunity laws and the percentage of female and
- non-white employees (and, after sufficiently many employees, the
- number of medically handicapped hires, as mandated by law).</p>
-
- <p>I mean, I get it, the fact that there are only two women in a team of
- 20+ engineers is a Problem with a capital P, one that needs serious
- attention. Ditto for the number of non-white employees. The ratios
- inside the group should really mirror that of the population at large,
- and currently they don’t, so there’s work to do. And I am fine with
- that work.</p>
-
- <p>But can we, please, not call this “lack of diversity”?</p>
-
- <p>Every time I read or hear that “we have a diversity problem” or “our
- team is not diverse,” I feel that I am being pushed back in the closet.</p>
-
- <p>Cultural diversity is an asset. International backgrounds make people
- more mindful accepting of different value systems. Conversations get
- lifted away from simple banter. With more than ten different cultural
- and a large combinatorial multiplication by several socio-economic
- backgrounds, this team has very little risk let discussions and
- decision-making become biased by poorly defined “common sense” or
- “shared values” and instead focuses on more tangible and objective arguments.</p>
-
- <p>Sexual diversity is an asset. This group is even right on track there:
- as the group grew, the overall gender balance (including non-technical
- staff) is getting better, and I was happy to discover that the second
- openly gay staff member was a woman. It’s almost as if women and men
- have an equal probability to be gay, and that a small team can display
- the same ratios as the general population. What a surprise, right?!</p>
-
- <p>Neurodiversity is an asset. One of the most fun, smart, entertaining
- and foremost beloved team members is an <span class="caps">ADHD</span> lighthouse. I am <em>so</em>
- proud and grateful to be able to see them as a publicly recognized
- (and rewarded) model that I can follow. There is a demographically
- appropriate distribution of dyslexia, autism, <span class="caps">OCD</span>, <span class="caps">SPD</span> and other
- divergences, and the surrounding social group is amazingly tolerant
- and embracing of this diversity. So why does it not get reported on,
- acknowledged, celebrated?</p>
-
- <p>Why do I still get to hear that “we have a diversity problem”?</p>
-
- <p class="center">❦❦❦</p>
-
- <p>June 18 is <a class="reference external" href="https://en.wikipedia.org/wiki/Autistic_Pride_Day">Autistic Pride Day</a>. Be there, be proud. I probably will.</p>
-
- <blockquote>
- <p class="center">❦❦❦</p>
- </blockquote>
- </article>
- </section>
-
-
- <nav id="jumpto">
- <p>
- <a href="/david/blog/">Accueil du blog</a> |
- <a href="http://tdotc.eu/2018/06/09/neurodiversity/">Source originale</a> |
- <a href="/david/stream/2019/">Accueil du flux</a>
- </p>
- </nav>
-
- <footer>
- <div>
- <img src="/static/david/david-larlet-avatar.jpg" loading="lazy" class="avatar" width="200" height="200">
- <p>
- Bonjour/Hi!
- Je suis <a href="/david/" title="Profil public">David Larlet</a>, je vis actuellement à Montréal et j’alimente cet espace depuis 15 ans. <br>
- Si tu as apprécié cette lecture, n’hésite pas à poursuivre ton exploration. Par exemple via les <a href="/david/blog/" title="Expériences bienveillantes">réflexions bimestrielles</a>, la <a href="/david/stream/2019/" title="Pensées (dés)articulées">veille hebdomadaire</a> ou en t’abonnant au <a href="/david/log/" title="S’abonner aux publications via RSS">flux RSS</a> (<a href="/david/blog/2019/flux-rss/" title="Tiens c’est quoi un flux RSS ?">so 2005</a>).
- </p>
- <p>
- Je m’intéresse à la place que je peux avoir dans ce monde. En tant qu’humain, en tant que membre d’une famille et en tant qu’associé d’une coopérative. De temps en temps, je fais aussi des <a href="https://github.com/davidbgk" title="Principalement sur Github mais aussi ailleurs">trucs techniques</a>. Et encore plus rarement, <a href="/david/talks/" title="En ce moment je laisse plutôt la place aux autres">j’en parle</a>.
- </p>
-
- <p>
- Voici quelques articles choisis :
- <a href="/david/blog/2019/faire-equipe/" title="Accéder à l’article complet">Faire équipe</a>,
- <a href="/david/blog/2018/bivouac-automnal/" title="Accéder à l’article complet">Bivouac automnal</a>,
- <a href="/david/blog/2018/commodite-effondrement/" title="Accéder à l’article complet">Commodité et effondrement</a>,
- <a href="/david/blog/2017/donnees-communs/" title="Accéder à l’article complet">Des données aux communs</a>,
- <a href="/david/blog/2016/accompagner-enfant/" title="Accéder à l’article complet">Accompagner un enfant</a>,
- <a href="/david/blog/2016/senior-developer/" title="Accéder à l’article complet">Senior developer</a>,
- <a href="/david/blog/2016/illusion-sociale/" title="Accéder à l’article complet">L’illusion sociale</a>,
- <a href="/david/blog/2016/instantane-scopyleft/" title="Accéder à l’article complet">Instantané Scopyleft</a>,
- <a href="/david/blog/2016/enseigner-web/" title="Accéder à l’article complet">Enseigner le Web</a>,
- <a href="/david/blog/2016/simplicite-defaut/" title="Accéder à l’article complet">Simplicité par défaut</a>,
- <a href="/david/blog/2016/minimalisme-esthetique/" title="Accéder à l’article complet">Minimalisme et esthétique</a>,
- <a href="/david/blog/2014/un-web-omni-present/" title="Accéder à l’article complet">Un web omni-présent</a>,
- <a href="/david/blog/2014/manifeste-developpeur/" title="Accéder à l’article complet">Manifeste de développeur</a>,
- <a href="/david/blog/2013/confort-convivialite/" title="Accéder à l’article complet">Confort et convivialité</a>,
- <a href="/david/blog/2013/testament-numerique/" title="Accéder à l’article complet">Testament numérique</a>,
- et <a href="/david/blog/" title="Accéder aux archives">bien d’autres…</a>
- </p>
- <p>
- On peut <a href="mailto:david%40larlet.fr" title="Envoyer un courriel">échanger par courriel</a>. Si éventuellement tu souhaites que l’on travaille ensemble, tu devrais commencer par consulter le <a href="http://larlet.com">profil dédié à mon activité professionnelle</a> et/ou contacter directement <a href="http://scopyleft.fr/">scopyleft</a>, la <abbr title="Société coopérative et participative">SCOP</abbr> dont je fais partie depuis six ans. Je recommande au préalable de lire <a href="/david/blog/2018/cout-site/" title="Attention ce qui va suivre peut vous choquer">combien coûte un site</a> et pourquoi je suis plutôt favorable à une <a href="/david/pro/devis/" title="Discutons-en !">non-demande de devis</a>.
- </p>
- <p>
- Je ne traque pas ta navigation mais mon
- <abbr title="Alwaysdata, 62 rue Tiquetonne 75002 Paris, +33.184162340">hébergeur</abbr>
- conserve des logs d’accès.
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